Mrs Davies is a 46 year old carer living just outside Bangor, Gwynedd. She is regular user of Carers Outreach Service.
The following is a typical day in her life.
At 6.30 this morning I was up with my daughter, aged 15, starting her day. Her brain disorder has affected her life in many ways, and over the past few years she has been using a wheelchair. This means an early start to get everything done before she goes to school.
Having to have help with personal care is difficult for her as she wants to be independent. I am there as a back up while she does as much as she can for herself. Then I take her through her exercises to help the stiffness that gets worse overnight before helping her with breakfast and collecting her things for school.
I phone Carers Outreach to hear a friendly voice
After what feels like a day’s work, she is off in the taxi and I start on the daily paperwork and phone calls. Every day there is a form to fill in or a therapist or social worker to phone. After that, and doing the housework and setting everything out ready for her return, I phone Carers Outreach to hear a friendly voice. Carers Outreach has been a lifeline over the years.
Suddenly at 3.30 I hear the taxi hooting and she’s home – all systems go! The big event this afternoon is going out to Bangor with her friends. Unfortunately one of their favourite coffee shops has a step to get in. Yet instead of making her feel different, all her friends have boycotted it and they find other places.
A big rush to help her get ready, get into our specially adapted car and then down to meet her friends at the clock – just like any other teenager. Even nowadays, people still stare at her or ask what’s wrong with her. We have a lot to learn from her teenage friends who just get on with things and find a way to make her one of them.
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Later on, after picking her up, she uses the computer to do her homework and uses the social network sites like most young people her age. Then we start on the routine of personal care and exercises again. When she is finally in bed I have time to reflect that tomorrow will bring another round of challenges – not from my daughter, but from the people who stare, or who make their cafes inaccessible, or who pity her.
I hope that sharing my experience will encourage others to share theirs.
Carers Outreach offers support, advice and guidance to carers in Anglesey, Conwy and Gwynedd. They can be reached on 01248 370 797 or firstname.lastname@example.org
Want to find out about services available to you and your child in your area? Would you like to chat about family matters in general? Then get in touch with the FamilyPoint Cymru helpline.
- Phone: 0300 222 57 57
- Text: 07860 052 905
- Instant message (see top of page)
We are open 6pm – 10pm Monday to Thursday and 10am – 2pm Friday & Saturday.